# Couple spent over $800k on gene therapy for daughter; she died

A couple paid over $800,000 for an experimental gene-editing therapy for their daughter, who subsequently died. The case underscores the high costs and serious risks of advanced medical treatments, raising ethical and safety questions about gene therapy.

**Importance:** 4/5

## Sources

### Technology
- [Hacker News](https://www.science.org/content/article/exclusive-death-girl-chinese-gene-editing-trial-was-never-made-public) — Thu, 23 Jul 2026 20:52:19 +0000